Examination of the association of sex and race/ethnicity with appearance concerns: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study

Jewett, Lisa R.; Kwakkenbos, Linda; Carrier, Marie-Eve; Malcarne, Vanessa L.; Bartlett, Susan J.; Furst, Daniel E.; Gottesman, Karen; Mayes, Maureen D.; Assassi, Shervin; Harcourt, Diana; Williamson, Heidi; Johnson, Sindhu R.; Korner, Annett; Steen, Virginia; Fox, Rina S.; Gholizadeh, Shadi; Mills, Sarah D.; Molnar, Jacqueline C.; Rice, Danielle B.; Thombs, Brett D.

Examination of the association of sex and race/ethnicity with appearance concerns: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study

Jewett, Lisa R.; Kwakkenbos, Linda; Carrier, Marie-Eve; Malcarne, Vanessa L.; Bartlett, Susan J.; Furst, Daniel E.; Gottesman, Karen; Mayes, Maureen D.; Assassi, Shervin; Harcourt, Diana; Williamson, Heidi; Johnson, Sindhu R.; Korner, Annett; Steen, Virginia; Fox, Rina S.; Gholizadeh, Shadi; Mills, Sarah D.; Molnar, Jacqueline C.; Rice, Danielle B.; Thombs, Brett D.

Authors

Lisa R. Jewett

Linda Kwakkenbos

Marie-Eve Carrier

Vanessa L. Malcarne

Susan J. Bartlett

Daniel E. Furst

Karen Gottesman

Maureen D. Mayes

Shervin Assassi

Diana Harcourt Diana2.Harcourt@uwe.ac.uk
Professor in Appearance Research

Heidi Williamson Heidi3.Williamson@uwe.ac.uk
Associate Professor in Applied Health Research

Sindhu R. Johnson

Annett Korner

Virginia Steen

Rina S. Fox

Shadi Gholizadeh

Sarah D. Mills

Jacqueline C. Molnar

Danielle B. Rice

Brett D. Thombs

Abstract

Objective: Appearance concerns are common in systemic sclerosis (SSc) and have been linked to younger age and more severe disease. No study has examined their association with sex or race/ethnicity.

Methods: SSc patients were sampled from the Scleroderma Patient-centered Intervention Network Cohort. Presence of appearance concerns was assessed with a single item, and medical and sociodemographic information were collected.
Results: Of 644 patients, appearance concerns were present in 72%, including 421 of 565 women (75%), 42 of 79 men (53%), 392 of 550 patients who identified as White (71%), 35 of 41 who identified as Black (85%), and 36 of 53 who identified as another race/ethnicity (68%). In multivariate analysis, women had significantly greater odds of reporting appearance concerns than men (odds ratio (OR)=2.97, 95% confidence interval (CI)=1.78-4.95, p

Journal Article Type	Article
Acceptance Date	Jun 27, 2016
Online Publication Date	Oct 14, 2016
Publication Date	Oct 14, 2016
Deposit Date	Jul 13, 2016
Publicly Available Date	Oct 19, 2016
Journal	Clinical and Experimental Rheumatology
Print ISSN	0392-856X
Peer Reviewed	Peer Reviewed
Volume	34
Issue	S100
Keywords	ethnicity, SPIN, appearance
Public URL	https://uwe-repository.worktribe.com/output/910635
Publisher URL	https://www.clinexprheumatol.org/abstract.asp?a=10635
Additional Information	Corporate Creators : SPIN Investigators
Contract Date	Jul 13, 2016